Swedish Children’s Heart Association
A thousand families a year in Sweden learn that their newborn baby has a heart condition. The Swedish Children’s Heart Association works to highlight and improve the lives of these sufferers.
Heart defects are the commonest deformity in Swedish babies, and can range from small holes which will seal by themselves to life-threatening conditions requiring immediate treatment.
Some 40 000 Swedes are currently living with congenital heart conditions, and roughly half of them are below the age of 18.
Founded in 1975, the association is a nationwide, non-party organisation with no religious affiliation and works activity to give a voice to children with heart defects and their families. In this way, it aims to highlight and improve their often extremely difficult lives.